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IMPORTANT: The information and material posted on this Web site is intended as general reference information only. Specific facts and circumstances may alter the concepts and applications of materials and information described herein. The information provided is not a substitute for professional advice and should not be relied upon in the absence of such professional advice specific to whatever facts and circumstances are presented in any given situation.
Post Surgery List of Categories
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I have had pit
surgery over 5 years ago, since then I have had a child, she is one and a half
now and I think my Cushing's is recuring, is this possible? when I was first
diagnosed I had a son approximatedly the same age!!
Yes, it is possible for Cushing's to return.
There are many people on the message boards who
have had recurrences. If you haven't see the
message boards,
click here for the Recurrences Board.
People have different choices for treating
recurrences. Some opt for another pituitary
surgery, radiation or adrenal removal. Best of
luck, whatever you decide to do about this!
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I went to endo
today. Having so much pain. I am 10 weeks post op. He says he thinks I have
rhuematoid arthritis. Is this common amongst us cushies?? What about pain
clinics for the withdrawal symptoms?? Has any one had luck with those??
Many Cushie's experience pain and arthritis. Some people have had good luck
with pain clinics. Here are some quotes about these experiences from the
message boards.
"Hi Everyone, Great News! I went to Pain Management Clinic for some help
with Cushing's rib pain, withdrawal pain and pain from the fractured
vertebrae. I think I finally found the right place to go!! ....
There should be a Pain Management Clinic in your area. I found mine in
the Good Old Yellow Pages, or Ask your Endo. At these clinics they also
offer other means of Pain Management such as bio-feedback, injections,
non-narcotic med's, acupuncture, dietary classes, and counseling. Anyway, I
hope this might help someone, I was at my wit's end and thought I would give
it a shot, nothing ventured nothing gained!! I will keep you posted on My
Venture."
"I have been to two different pain clinics in my area. Both
of those doctors are anesthesiologists. Therefore, they are more informed
about drugs and know how they interact with other drugs and know what to do
if you have a reaction to something. They are more apt to prescribe the
drugs needed to control pain and enough of them. It's bad enough to have
pain and even worse when your pc is afraid to prescribe the medications you
need to control it or doesn't have enough knowledge in this area to do it. I
would recommend a pain clinic for anyone who is in chronic pain."
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I am post-op
pit surg 8 weeks. Gone from 50mg cortef per day to 15 mg per day. Not losing
weight. Shouldn't I be?? Today face looks red, feeling edgie.
People usually don't start losing weight right
away after pituitary surgery - generally that
happens around 6 months. If you get that far
along and haven't lost anything, you should let
your endocrinologist know.
You probably have post-surgery appointments,
too. Let him/her know of your concerns. It might
be that you're going off the cortef too quickly
and need to slow that down a bit - but check
with your endo first.
There are others on the message boards that
voice these same concerns. You can read those -
and participate, if you like - at
Post Surgery Message Board
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I've finally
been diagnosed and am going to have a transsphenoidal. What can I expect
post-surgery?
After Your Transsphenoidal
Surgery
After your physicians have determined that it is
reasonably safe to discharge you from the
hospital following transsphenoidal pituitary
surgery there are a number of important
situations that may arise. Most
people feel well after discharge. However, you
should be aware of these possible problems, just
in case. The following general guidelines are
provided to promote your health and safety.
Headache, facial, and sinus pain are not
uncommon following pituitary surgery. As you may
have noted, the pain and discomfort typically
improve on a daily basis following surgery. If
you should experience a worsening of your pain
or discomfort, please contact your neurosurgeon
immediately.
Worsening headache, fever, chills, yellowish
green nasal discharge, and neck stiffness may
all signify an infectious process complicating
your surgery. You should notify either your
neurosurgeon, endocrinologist, or primary
physician immediately should any of these
symptoms and signs develop.
Persistent bloody, clear watery, or yellowish
green nasal discharge should prompt an immediate
call to one of your physicians.
Development of abnormalities in your vision
should prompt an urgent call to your
neurosurgeon, neuroopthalmologist, or any other
one of your physicians.
Chest pain or discomfort, shortness of
breath, swelling of one or both of your legs,
and passage of dark black tarry stools may
represent medical complications in patients who
undergo surgery of any type. Contact your
physicians should any of these symptoms or signs
occur.
Some patients develop disorders of salt and
water metabolism following pituitary surgery.
Headache, nausea, vomiting, confusion, impaired
concentration, and muscle aches might be due to
hyponatremia (low blood sodium levels). This
disorder typically occurs 7 to 10 days after
surgery and is more common in patients who have
had surgery for Cushing's disease. If you
develop these symptoms, contact your
endocrinologist or one of your other physicians
immediately. Excessive urination, thirst, and
the need to ingest large quantities of fluids
might be related to the onset of diabetes
insipidus or diabetes mellitus. These disorders
put you at risk for dehydration. The symptoms
require urgent evaluation and determination of
the underlying cause so that appropriate
treatment may be given. Thus, if these symptoms
develop, contact your endocrinologist or one of
your other physicians immediately.
You may or may not have been prescribed
hormones at the time of discharge. If so, you
should take these medications, without
interruption, as prescribed by your physician.
Adjustments in your glucocorticoid hormone
dosage may be required. Please consult the
instructions for patients with adrenal
insufficiency for general recommendations. You
may be asked to withhold your dose of
glucocorticoid replacement at the time of your
first postoperative follow-up visit. Contact
your endocrinologist for advice on this matter
if specific instructions have not been provided.
The instructions for patients with
hypothyroidism on thyroxine replacement may be
consulted for advice regarding thyroid hormone
medication. You should consult the instructions
for patients with diabetes insipidus treated
with vasopressin if you have been diagnosed with
diabetes insipidus or suspect that you may have
developed the disorder. Above all, contact your
physicians if you have any questions whatsoever
about any one of your medications.
In general, the first postoperative follow-up
visit will be scheduled to occur four weeks
after surgery. If problems develop prior to that
time, you will be asked to return to the office
for evaluation. Subsequent follow-up is tailored
to the individual needs of each patient and in
part depends upon the diagnosis, presence of
residual disease, likelihood of recurrent
disease, extent and type of hormonal disorders,
and other complications of pituitary disease.
In most cases, lifelong follow-up is
necessary. You should ensure that you receive
appropriate follow-up by physicians
knowledgeable regarding the diagnosis and
management of pituitary disorders.
From http://www.cushings-help.com/after_surgery.htm
For other post surgery help, visit the
Post Surgery Message Board
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I had
pituitary surgery a while ago. Now my endo tells me I might need Growth Hormone.
Can you tell me more about that?
Adults need growth hormone too!
Growth hormone (GH) is a protein hormone made
by the pituitary, a hormone producing gland
located at the base of the skull. The pituitary
gland not only produces GH, but releases
(secretes) GH into the bloodstream. After
entering the bloodstream, GH attaches to certain
tissues, especially bones, and results in height
increase in children. Damage to the pituitary
gland in children results in low GH secretion in
children, resulting in poor growth and resultant
short stature. GH can be given to children to
restore their normal growth and development.
Over the last ten years, it has been
discovered that adults need GH too. Like
children, adults can be given this hormone if
deficient. The approval by the FDA to give GH to
deficient adults has been in place for the last
two years. Since adults have already achieved
their genetically determined height, loss of GH
does not impact height, but it does affect the
body in many other ways. If adults have a
deficiency of GH, major changes to the
composition of the body results. These changes
include loss of muscle, accumulation of fat,
especially in the abdomen, and a decrease in the
density (but not the length) of bones. Because
GH is also necessary for normal brain function,
adults without this hormone have psychological
changes in addition. This article will focus on
describing the GH deficiency syndrome as it
applies to adults, and how it is currently
diagnosed and treated.
From
GH Deficiency
This information was developed by David Cook,
M.D. It is not intended to substitute for a full
and frank consultation with qualified medical
personnel, which is the primary means for a
patient to obtain care and treatment. The
information was believed to be current on
November 5, 1998 and with the lapse of time,
certain of this material will be outdated.
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I have had
pituitary surgery, why do I still have a problem and have to take radiation
treatment and take medication?
Some patients are not cured with surgery. The
reasons for this are most commonly related to
the size of the tumor: the larger the tumor, the
less likely it can be removed completely.
Additionally, the tumor may have spread to
nearby structures such as bone, the cavernous
sinus (location of carotid artery and nerves
controlling eye movements) and the membrane
surrounding the gland. In this situation, the
surgeon removes all that can be safely removed,
but if the tumor has invaded surrounding
structures such as bone or the cavernous sinus
or the membrane covering the pituitary,
excessive growth hormone production may persist.
Surgery is still the first step, since the
medical treatments are not optimally effective
in shrinking the tumor and if present, relieving
pressure on the optic nerve.
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